Friday, April 2, 2010

I'm Aware!

I wish I could wear your eyes for a day.
Hear what is rattling around in your ears.
Know what is grabbing your thoughts.
Understand what makes you giggle, and why you’re crying.

Opening lines to the poem "For Jack"; visit Finding Jackson to read the whole poem.

It's World Autism Awareness Day. I didn't even know such a thing existed. My world is aware of autism every day, thanks to my beautiful Seth. To honor all of the families who are trying to love and teach and train and reach these quirky kids, I offer a Seth Story:

A couple of weeks ago at our homeschool co-op, one of the moms told me she had nominated Seth for one of the weekly awards given by the campus director. Then she told me why.

It seems that Seth encountered a maintenance man patching and painting some dings in the walls in the nursery area of the church. He stood a little too close, and leaned down a little too far over the man's shoulder, and the man just kept on working. After several minutes, Seth said, "You sure are doing a good job with that."

"Well, thank you, young man!" was the response.

"Is that 'encouraging speech'?" Seth wanted to know.

"Why, yes! Yes it is!" the man said, looking at Seth, who was characteristically averting his eyes.

"I'm working on telling encouraging speech," Seth informed him, before ambling away.

When Seth was diagnosed with "moderate to severe classic childhood autism" at just less than 3 years of age, a dialog like the one above was considered to be categorically out of the question. We've been blessed with the very best education and help, amazing therapists, and the desire and ability to home educate, but all credit, praise, honor and glory for every accomplishment large and small belongs solely to the One who saw Seth's unformed being in my womb, and wrote down every day ordained for him before one of them came to be.

To him who is able to keep you from falling and to present you before his glorious presence without fault and with great joy—to the only God our Savior be glory, majesty, power and authority, through Jesus Christ our Lord, before all ages, now and forevermore! Amen.
Jude 24-25


  1. And a little child shall lead them.....

    I have a nephew who is mildly autistic; Frankie is on the Asperper's spectrum. For the most part he functions in society, but has noticeable "issues" fitting in. His son, on the other hand is profoundly autistic with little or no speech and only occasional awareness of the world around him.

    I often wonder how much more well adjusted Frankie would have been if he'd had the therapy available today, and I think his son would be more social if he had better teachers and therapy.

    God blessed Seth with the most important thing to an autistic child: loving parents who are relentless in their pursuit of the best tools to help their child develop to his full potential.

    Hope you have a blessed and joyous Resurrection Day, sweet friend. :o)

    Love and big hugs,


  2. Hallelujah, hallelujah, to the King of Glory. All praise for to him for Seth...and, his momma.

  3. That's absolutely beautiful.

  4. Seth looks thrilled!!